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06-10-09, 12:18 PM
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My Son needs your help Post #1 (permalink)
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Junior Member
Join Date: 06-10-09
Location: Vermont
Posts: 1
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My Son needs your help
I am 24 years old and the Mother of an amazing 14 month old little boy named Cole.
Cole was born 5 weeks early after a very normal pregnancy. At birth he passed all of his screenings and we went home with a healthy little boy.
I have since learned from Doctors that they consider my son deaf/blind with a rare seizure disorder. They tell me he may never crawl, walk or talk but they do not know why. Obviously as a Mother I cannot live with that answer. He has had 5 surgeries, MRIs, EEGs, VEEGs, EKGs, ABRs, spinal taps, ultra sounds, genetic testing, DNA sequencing, chromosome analysis, biopsies, nightly steroid injections pretty much you name it he has been through it. All testing has come back normal. A PET scan revealed an abnormal brain but they do not know why or what it means because nobody has seen a child quite like mine.
I believe that if we could just get Cole's story told than someone, somewhere might recognize what is going on with him. We contacted newspapers, magazines, news stations and talk shows asking for their help but aside from a local newspaper and radio station we have not received a response. We decided to take matters into our own hands and created a video sharing our son's story. If you could take 4.5 minutes to watch this video and help us share Cole's story we would be forever grateful.
http://www.onetruemedia.com/shared?p...edium=text_url
All it takes is one person.
Sincerely,
Hanna
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